Project 171365

Realities, Expectations and Attitudes to Life Support Technologies in Intensive Care for Octogenarians: The REALISTIC 80

171365

Realities, Expectations and Attitudes to Life Support Technologies in Intensive Care for Octogenarians: The REALISTIC 80

$800,444
Project Information
Study Type: Observational Cohort_Study
Therapeutic Area: Palliative_Care
Research Theme: Clinical
Disease Area: critical illness
Data Type: Canadian
Abstract Summary

Every day in hospitals across Canada, frail elderly patients at or near the end of life are faced with decisions related to the use of life support machines. In a recent survey carried out at several large teaching hospitals across the country, seriously ill patients rated "not being prolonged on life supports" as the most important element in good quality care at the end of life. However, this same group of patients appeared to be quite poorly informed about their treatment options at the end of life. To make an informed choice about the use of life supports at the end of life, patients and their families need to know what can happen over the long term should they choose to go to an intensive care unit and have life supports applied. Long-term outcomes are currently unknown despite their obvious importance to decision making. The purpose of this study is to describe the 12-month survival and quality of life of patients following critical illness and learn the family caregivers' perspective on the quality of care provided. We anticipate that 800 patients and families being cared for at 20 intensive care units across Canada will contribute to this research project. The information gained will prove invaluable not only to patients and their families but also to their doctors and all health care professionals, who need to better understand the perspectives of those for whom they provide care.

Research Characteristics

This project includes the following research characteristics:

Implementation Science
Patient Reported Outcomes
Real World Evidence
Patient Engagement
Ethics Focus
Social Determinants
Cohort Establishment
Multicenter
Knowledge Translation Focus
Quality of Life
Time to Event
Composite Endpoint
Vulnerable Populations
Study Justification

"The purpose of this study is to describe the 12-month survival and quality of life of patients following critical illness and learn the family caregivers' perspective on the quality of care provided."

Novelty Statement

"The information gained will prove invaluable not only to patients and their families but also to their doctors and all health care professionals, who need to better understand the perspectives of those for whom they provide care."

Methodology Innovation

prospective cohort study to describe the 12-month survival and quality of life of octogenarian patients following critical illness and to learn the family caregivers' perspective on the quality of care provided

Keywords
Aging Clinical Decision Making Outcomes Research Quality Of Care Quality Of Life Satisfaction