Project 458902

It's time to address fear of cancer recurrence in the family caregiver: adaptation, feasibility, and acceptability study of an online version of the Fear Of Recurrence Therapy (FORT) for family caregivers.

458902

It's time to address fear of cancer recurrence in the family caregiver: adaptation, feasibility, and acceptability study of an online version of the Fear Of Recurrence Therapy (FORT) for family caregivers.

$105,000
Project Information
Study Type: Unclear
Research Theme: Clinical
Institution & Funding
Principal Investigator(s): Lamarche, Jani
Supervisor(s): Lebel, Sophie
Institution: University of Ottawa
CIHR Institute: Cancer Research
Program: Doctoral Research Award: Canada Graduate Scholarships
Peer Review Committee: Doctoral Research Awards - B
Competition Year: 2021
Term: 3 yrs 0 mth
Abstract Summary

Fear of cancer recurrence (FCR) is common, persistent, and is associated with negative physical and mental health outcomes. Family caregivers (FC) of cancer patients experience equal or greater levels of FCR than patients themselves. Several interventions have demonstrated their ability to reduce FCR among cancer patients, including a group intervention called Fear of Recurrence Therapy (FORT; Maheu & al., 2016). However, no intervention has ever been adapted and offered to caregivers. The goals of the proposed study are to demonstrate 1) that a newly adapted intervention of FORT for caregivers (FC-FORT) is feasible (e.g., participant recruitment, attendance) and acceptable (e.g., FC satisfaction) for a larger study, and 2) the clinical implications of FC- FORT on FCR and quality of life. An advisory board composed of researchers, therapists, and FC was created to adapt FORT for FC and to an online format. FC and therapists are now being recruited to conduct a usability study of the newly adapted FC-FORT. They will be asked to complete a feedback questionnaire after each session and to take part in an exit interview. The content of these will be summarized back to the advisory board to further refine FC-FORT. Following a successful usability study, FC-FORT will be given to four groups of nine new FC (pilot study). Female FC will be recruited through hospitals, social media and community partners. They will complete a questionnaire package before and after the intervention, and at a three month follow up. They will also be invited to complete an exit interview. The proposed study is needed to determine if an already developed FCR intervention can be adapted to FC and if it can be successfully pilot tested. This will help bridge an important gap in bringing evidence-based care to caregivers who have never been offered help before for their FCR. The proposed project will also allow to further feasibility and acceptability of online health interventions.

No special research characteristics identified

This project does not include any of the advanced research characteristics tracked in our database.

Keywords
Acceptability Adaptation E-Health Family Caregivers Fear Of Cancer Recurrence Feasibility Intervention Pilot Study Randomized Controlled Trial Teletherapy