Project 460746
Planning a National Limb Loss Registry
Planning a National Limb Loss Registry
Project Information
| Study Type: | Unclear |
| Research Theme: | Health systems / services |
Institution & Funding
| Principal Investigator(s): | Hitzig, Sander L; Mackay, Crystal J; Mayo, Amanda; Miller, William C; Zidarov, Diana |
| Co-Investigator(s): | Domingo, Aristotle; Saporta, Adam; Andrysek, Jan; Azhari, Fae; Baltzer, Heather; Best, Krista L; Cimino, Stephanie R; Dilkas, Steven M; Dittmer, Douglas K; Dudek, Nancy L; Grad, Sharon; Guilcher, Sara J; Habra, Natalie; Hebert, Jacqueline S; Hunter, Susan W; Katz, Joel D; Kayssi, Ahmed; King, Sheena; Lemaire, Edward D; Mercier, Catherine; Nowrouzi-Kia, Behdin; O'Connell, Colleen; Omana, Humberto A; Payne, Michael W; Pousett, Brittany; Skrabek, Ryan; Totosy De Zepetnek, Julia O; Underwood, Heather; Viana, Ricardo; Walker, Janice; Zucker-Levin, Audrey R |
| Institution: | Sunnybrook Research Institute (Toronto, Ontario) |
| CIHR Institute: | Musculoskeletal Health and Arthritis |
| Program: | |
| Peer Review Committee: | Planning and Dissemination - IMHA |
| Competition Year: | 2022 |
| Term: | 1 yr 0 mth |
Abstract Summary
Limb loss can negatively affect individuals' physical and mental health and their quality of life. In Canada, we have limited information about the size, scope, and impact of amputations to inform decisions about health care and health policy for people with limb loss. Clinical registries are popular tools used internationally to organize patient clinical and demographic information, facilitate public reporting, accelerate research and support health service improvements. Our aim is to support the development of a national limb loss clinical registry that will advance research, health system improvements, and support advocacy efforts. To achieve this goal, we will identify what data are currently collected and engage with a range of stakeholders to identify indicators that should be part of the clinical registry. Once agreement is achieved, our team will work to find ways to move the clinical registry into action.
No special research characteristics identified
This project does not include any of the advanced research characteristics tracked in our database.